Rdd 2


Boler-Parseghian Center for Rare and Neglected Diseases (CRND) is an academic and outreach center devoted to the advancement of treatments for rare and neglected diseases. CRND's focus is to identify treatments for rare neurogenerative diseases, rare cancers, and neglected infectious diseases through programs that partner with researchers, service organizations, community health care providers and patient families. 

Our interactive program provides a comprehensive approach to enhancing diseases knowledge and treatments. The goal of the center is to create lasting relationships with patient families through medical record review, community events, education and research programs that develop successful treatments and therapies. 

Events 

Save the Date / Notre Dame Rare Disease Day Event

Picture1

Friday February 9th & Saturday February 10th, 2018

Our Keynote speaker, Mr. Rob Long, is the Director of Strategic Development for Uplifting Athletes.  Mr. Long, a former All American Punter for Syracuse University, inspired many with his unrelenting determination to successfully win his battle against a rare form of brain cancer.

For more information, please contact Corianne Kellems – ckellems@nd.edu


Celebration of ND Trail / 175th Anniversary 


In the tradition of Father Sorin’s inspirational journey and intrepid spirit—our Notre Dame spirit—we retraced his journey from Vincennes to Notre Dame. We traveled those miles in a collective renewal of our determination, to rededicate ourselves to Notre Dame’s mission to seek God, study the world, and serve humanity—to boldly lead the way into the new chapters of our story. Author: Notre Dame Trail http://trail.nd.edu/

20170826 110928

20170826 101017

20170826 102432 1

20170826 095927

20170826 101004 1


During one of our weekly Lab Meetings, students who worked in the Haldar Lab this summer showed off their musical talents. Students2

Students

 

News

RareND Chipotle Fundraiser

Author: RareND

RareND

Needing another excuse to go to Chipotle? Bring your friends next Tuesday to raise money for rare disease awareness and education!! Half of your purchase will go to RareND. Just show the cover photo of this event at checkout or tell them you're there for the RareND fundraiser!

Visit the facebook event link for more information:…

Read More about RareND Chipotle Fundraiser

Neurofibromatosis Education, Patient Support, and Awareness Seminar September 23 | 9:00 am - 12:00 pm

Author: Provided

No One Fights Alone People 01 768x598

This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone!

Speakers include:

  • Neurofibromatosis Midwest Executive Director, Diana Haberkamp

Read More about Neurofibromatosis Education, Patient Support, and Awareness Seminar September 23 | 9:00 am - 12:00 pm