Boler-Parseghian Center for Rare and Neglected Diseases (CRND) is an academic and outreach center devoted to the advancement of treatments for rare and neglected diseases. CRND's focus is to identify treatments for rare neurogenerative diseases, rare cancers, and neglected infectious diseases through programs that partner with researchers, service organizations, community health care providers and patient families.
Our interactive program provides a comprehensive approach to enhancing diseases knowledge and treatments. The goal of the center is to create lasting relationships with patient families through medical record review, community events, education and research programs that develop successful treatments and therapies.
Save the Date / Notre Dame Rare Disease Day Event
Friday February 9th & Saturday February 10th, 2018
Our Keynote speaker, Mr. Rob Long, is the Director of Strategic Development for Uplifting Athletes. Mr. Long, a former All American Punter for Syracuse University, inspired many with his unrelenting determination to successfully win his battle against a rare form of brain cancer.
For more information, please contact Corianne Kellems – firstname.lastname@example.org
Celebration of ND Trail / 175th Anniversary
In the tradition of Father Sorin’s inspirational journey and intrepid spirit—our Notre Dame spirit—we retraced his journey from Vincennes to Notre Dame. We traveled those miles in a collective renewal of our determination, to rededicate ourselves to Notre Dame’s mission to seek God, study the world, and serve humanity—to boldly lead the way into the new chapters of our story. Author: Notre Dame Trail http://trail.nd.edu/
During one of our weekly Lab Meetings, students who worked in the Haldar Lab this summer showed off their musical talents.
Needing another excuse to go to Chipotle? Bring your friends next Tuesday to raise money for rare disease awareness and education!! Half of your purchase will go to RareND. Just show the cover photo of this event at checkout or tell them you're there for the RareND fundraiser!
Visit the facebook event link for more information:…
This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone!
- Neurofibromatosis Midwest Executive Director, Diana Haberkamp …