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In honor of Rare Disease Day, February 28th

Alone we are rare, together we are strong

Click on the photo below to view photos from Rare and Neglected Disease Day Conference


Cancellation Due to Weather / Rare and Neglected Disease Day Conference 

South Bend, Indiana has issued a weather warning status this evening. We are meant to stay off the roads. Therefore, we had to cancel tomorrow's 2.10.18 program. 

We are very saddened by this and we thank everyone who was able to make it today. For everyone that we did not see we hope to see you all next year!

Rare and Neglected Disease Day 2018 Agenda is out! 

Click below for full schedule

Rare And Neglected Disease Day 2018











Follow up on Rare and Neglected Disease Day 2018

Author: Barb Calhoun

This year’s Rare Disease Day Conference started strong on Friday, February 9th, with exceptional research talks along with patient perspectives on the importance of research for Rare Diseases. NonKetotic Hyperglycinemia, Rare Cancers, Cystic Fibrosis and Niemann Pick Type C were some of the research topics presented. Sadly, Saturday was cancelled due to a snow blockade, but we present great highlights from Friday below.…

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