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This year’s Rare Disease Day Conference started strong on Friday, February 9th, with exceptional research talks along with patient perspectives on the importance of research for Rare Diseases. NonKetotic Hyperglycinemia, Rare Cancers, Cystic Fibrosis and Niemann Pick Type C were some of the research topics presented. Sadly, Saturday was cancelled due to a snow blockade, but we present great highlights from Friday below.…
Needing another excuse to go to Chipotle? Bring your friends next Tuesday to raise money for rare disease awareness and education!! Half of your purchase will go to RareND. Just show the cover photo of this event at checkout or tell them you're there for the RareND fundraiser!
Visit the facebook event link for more information:…
This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone!
Registration is free but required.
Please send registration and abstracts to Corianne Kellems at firstname.lastname@example.org
We will start at noon, lunch will be served.
Program begins at 1:00 pm.
First session will be a joint session between MNID and the Midwest Microbial Pathogenesis Conference.…
The Notre Dame Trail launched today and as many of you know, I will be joining August 22-26 for the 67-Mile, 5-Day final stretch. Retracing the journey of the founder Fr. Sorin from Vincennes to South Bend, Indiana in 1842, we are honoring his legacy and celebrating 175 years of amazing things at Notre Dame.…
A Mass for the Feast of the Transfiguration and Celebration of the Life of Ara Parseghian will take place at 2 p.m. Sunday (Aug. 6) at the Basilica of the Sacred Heart at the University of Notre Dame.
All rooms are available to start booking today.
Please mention MNID Conference at the University of Notre Dame.
Waterford Estates Lodge
52890 SR 933 N
South Bend, IN 46637
$75 a room
Block will expire on August 21st, 2017
222 S. Dixie Way
South Bend, IN 46637
$84 a room …
The 6th Annual
Midwest Neglected Infectious Diseases Meeting
August 27-28th 2017
University of Notre Dame College of Science
Center for Rare and Neglected Diseases
Registration is Free but required.
To register please contact Corianne Kellems email@example.com…
Perched on an orange ball taller than she is, Hope Kern giggles as her therapist tells her to stretch one of her long, thin arms and touch her image in a mirror.
“Come on, Hopey-Hope!” says Christy Bartek, a pediatric speech-language pathologist at the Children’s Therapy Center at Memorial Children’s Hospital in South Bend. “You can do it!”…
Dr. Xin Lu, the John M. and Mary Jo Boler Assistant Professor of Biological Sciences, in the Boler-Parseghian Center for Rare and Neglected Diseases, has been awarded a Young Investigator Award from the Indiana Clinical and Translational Sciences Institute (CTSI).
"His work investigates ways to develop cures for rare cancers that are very poorly understood and extremely difficult to treat," said Kasturi Haldar, Rev. Julius A. Nieuwland C.S.C. professor of biological sciences and James Parsons and Carrie Quinn director of the Boler-Parseghian Center for Rare and Neglected Diseases. "He is a leading expert in developing mouse models that can mimic rare cancers caused by human mutations, in which to test new therapies."…
Professor Kasturi Haldar has received the 2017 Rodney F. Ganey, Ph.D., Community-Based Research Award for a project that has helped improve rare disease recognition and treatment in northern Indiana. The award is a $5,000 prize presented annually to a regular faculty member at the University of Notre Dame who has completed at least one research project that addresses a need within South Bend or the surrounding area. Haldar is a molecular cell biologist and the Rev. Julius Nieuwland Professor of Biological Sciences and Parsons-Quinn director of the Boler-Parseghian Center for Rare and Neglected Diseases at the University of Notre Dame.…