News

RareND Chipotle Fundraiser

Author: RareND

RareND

Needing another excuse to go to Chipotle? Bring your friends next Tuesday to raise money for rare disease awareness and education!! Half of your purchase will go to RareND. Just show the cover photo of this event at checkout or tell them you're there for the RareND fundraiser!

Visit the facebook event link for more information:…

Read More about RareND Chipotle Fundraiser

Neurofibromatosis Education, Patient Support, and Awareness Seminar September 23 | 9:00 am - 12:00 pm

Author: Provided

No One Fights Alone People 01 768x598

This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone!

Speakers include:

  • Neurofibromatosis Midwest Executive Director, Diana Haberkamp

Read More about Neurofibromatosis Education, Patient Support, and Awareness Seminar September 23 | 9:00 am - 12:00 pm

MNID 2017 Schedule

Author: Kasturi Haldar

MNID

Sunday August 27th 2017,  Jordon 105

Registration is free but required.

Please send registration and abstracts to Corianne Kellems at ckellems@nd.edu

 

We will start at noon, lunch will be served.

Program begins at 1:00 pm.

First session will be a joint session between MNID and the Midwest Microbial Pathogenesis Conference.…

Read More about MNID 2017 Schedule

Hotels for Midwest Neglected Infectious Diseases Meeting (MNID) 2017

Author: Provided

All rooms are available to start booking today.

Please mention MNID Conference at the University of Notre Dame.

 

Waterford Estates Lodge

52890 SR 933 N 

South Bend, IN 46637

(574) 272-5220

$75 a room 

Block will expire on August 21st, 2017 

 

Microtel 

222 S. Dixie Way 

South Bend, IN 46637

(574) 273-4300

$84 a room 

Read More about Hotels for Midwest Neglected Infectious Diseases Meeting (MNID) 2017

Glimmers of Hope

Author: Deanna Csomo McCool

News Hope Kern

Perched on an orange ball taller than she is, Hope Kern giggles as her therapist tells her to stretch one of her long, thin arms and touch her image in a mirror.

“Come on, Hopey-Hope!” says Christy Bartek, a pediatric speech-language pathologist at the Children’s Therapy Center at Memorial Children’s Hospital in South Bend. “You can do it!”…

Read More about Glimmers of Hope

Xin Lu wins 2017 Indiana CTSI Young Investigator Award

Author: Provided

Lu3

Dr. Xin Lu, the John M. and Mary Jo Boler Assistant Professor of Biological Sciences, in the Boler-Parseghian Center for Rare and Neglected Diseases, has been awarded a Young Investigator Award from the Indiana Clinical and Translational Sciences Institute (CTSI).

"His work investigates ways to develop cures for rare cancers that are very poorly understood and extremely difficult to treat," said Kasturi Haldar, Rev. Julius A. Nieuwland C.S.C. professor of biological sciences and James Parsons and Carrie Quinn director of the Boler-Parseghian Center for Rare and Neglected Diseases. "He is a leading expert in developing mouse models that can mimic rare cancers caused by human mutations, in which to test new therapies."…

Read More about Xin Lu wins 2017 Indiana CTSI Young Investigator Award

Kasturi Haldar wins 2017 Ganey Award for Community-based research

Author: JP Shortall

Kasturi

April 13, 2017

Professor Kasturi Haldar has received the 2017 Rodney F. Ganey, Ph.D., Community-Based Research Award for a project that has helped improve rare disease recognition and treatment in northern Indiana. The award is a $5,000 prize presented annually to a regular faculty member at the University of Notre Dame who has completed at least one research project that addresses a need within South Bend or the surrounding area. Haldar is a molecular cell biologist and the Rev. Julius Nieuwland Professor of Biological Sciences and Parsons-Quinn director of the Boler-Parseghian Center for Rare and Neglected Diseases at the University of Notre Dame.…

Read More about Kasturi Haldar wins 2017 Ganey Award for Community-based research