To view newsletter, click on photo below.
All current undergraduate students in their senior year may be nominated.
The Megan K. Crowley Award
This award recognizes outstanding contributions in the areas of Rare Disease Patient Advocacy at the Boler-Parseghian Center. Such contributions may include, but are not limited to: 1) Raising awareness of Rare Diseases at the University of Notre Dame with regional, national and international organizations 2) Developing products/tools/technologies that help rare disease patients and their families with communications and disease management. Awardees will receive a $1000 cash award and a plaque.…
MORE INFORMATION TO FOLLOW
Proceeds from this event will be used for NKH Research at the Boler Parseghian Center for Rare and Neglected Diseases.
Visit https://sites.google.com/view/norajanefoundation/home for more information!
Congrats to Megan K. Crowley! Megan received the Megan K. Crowley Award for Patient Advocacy, whose recipient Megan Crowley, ND ’19 is a tireless patient advocate and President of the Notre Dame Chapter of Make a Wish Foundation that aims to grant a wish of every child diagnosed with a life threatening condition. CRND is honored Megan came to study at Notre Dame.…
Dear NKH Supporters,
We’re excited to share a new family initiative taken on by the Fitzpatrick, Nohelty, and Sarb families - a bi-annual newsletter for the NKH community.
The goal of the newsletter is three-fold, to: 1) to share information, 2) increase awareness and 3) together, accelerate progress in the fight against NKH.…
Xin Lu, the John M. and Mary Jo Boler Assistant Professor of biology, was awarded a 2018 Susan G. Komen research grant to identify potential new therapies for treating metastatic breast cancer.
An interactive working session hosted by Notre Dame to explore how universities can accelerate rare disease research and discovery through innovation, entrepreneurship and cross-sector partnerships.
John Crowley, Chairman and CEO of Amicus Therapeutics and Founding Board Member of Global Genes…
Ralph Isberg, Editorial Advisor and former Section Editor for PLOS Pathogens, remembers his friend, colleague, and mentor Stanley Falkow, and reflects on his contributions to the understanding of bacterial pathogens and his commitment to mentorship.
When I first entered the Falkow lab as a postdoctoral fellow in December 1983, I possessed a strange combination of naivete and arrogance that played to Stanley’s strengths. This allowed him to shut down the still and extremely small voice in his head that said: “Maybe this is a bad idea.” Only after success occurred, and I imagine only very rarely, did he ever reveal evidence of this voice.…
Watch / Give / Vote
Click on the picture below to learn more about ND Day 2018!
This year’s Rare Disease Day Conference started strong on Friday, February 9th, with exceptional research talks along with patient perspectives on the importance of research for Rare Diseases. NonKetotic Hyperglycinemia, Rare Cancers, Cystic Fibrosis and Niemann Pick Type C were some of the research topics presented. Sadly, Saturday was cancelled due to a snow blockade, but we present great highlights from Friday below.…
Needing another excuse to go to Chipotle? Bring your friends next Tuesday to raise money for rare disease awareness and education!! Half of your purchase will go to RareND. Just show the cover photo of this event at checkout or tell them you're there for the RareND fundraiser!
Visit the facebook event link for more information:…
This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone!
- Neurofibromatosis Midwest Executive Director, Diana Haberkamp …
Sunday August 27th 2017, Jordon 105
Registration is free but required.
Please send registration and abstracts to Corianne Kellems at email@example.com
We will start at noon, lunch will be served.
Program begins at 1:00 pm.
First session will be a joint session between MNID and the Midwest Microbial Pathogenesis Conference.…
The Notre Dame Trail launched today and as many of you know, I will be joining August 22-26 for the 67-Mile, 5-Day final stretch. Retracing the journey of the founder Fr. Sorin from Vincennes to South Bend, Indiana in 1842, we are honoring his legacy and celebrating 175 years of amazing things at Notre Dame.…
A Mass for the Feast of the Transfiguration and Celebration of the Life of Ara Parseghian will take place at 2 p.m. Sunday (Aug. 6) at the Basilica of the Sacred Heart at the University of Notre Dame.
All rooms are available to start booking today.
Please mention MNID Conference at the University of Notre Dame.
Waterford Estates Lodge
52890 SR 933 N
South Bend, IN 46637
$75 a room
Block will expire on August 21st, 2017
222 S. Dixie Way
South Bend, IN 46637
$84 a room …