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Request for Nominations: Patient Advocacy and Rare Disease Research Awards
All current undergraduate students in their senior year may be nominated.
The Megan K. Crowley Award
This award recognizes outstanding contributions in the areas of Rare Disease Patient Advocacy at the Boler-Parseghian Center. Such contributions may include, but are not limited to: 1) Raising awareness of Rare Diseases at the University of Notre Dame with regional, national and international organizations 2) Developing products/tools/technologies that help rare disease patients and their families with communications and disease management. Awardees will receive a $1000 cash award and a plaque.…
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Fiona and Friends Walk for NKH
St. Louis Family to hold NKH Research Fundraiser!
Proceeds from this event will be used for NKH Research at the Boler Parseghian Center for Rare and Neglected Diseases.
Visit https://sites.google.com/view/norajanefoundation/home for more information!
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Megan K. Crowley Award for Patient Advocacy | John M. and Mary Jo Boler Rare Disease Research Award
Congrats to Megan K. Crowley! Megan received the Megan K. Crowley Award for Patient Advocacy, whose recipient Megan Crowley, ND ’19 is a tireless patient advocate and President of the Notre Dame Chapter of Make a Wish Foundation that aims to grant a wish of every child diagnosed with a life threatening condition. CRND is honored Megan came to study at Notre Dame.…