Rare and Neglected Diseases Symposium 2022: Living with Rare

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APRIL 4TH. 2.00-5.00 

 

2.00 - 2.10.pm. Welcome. Dr. Kasturi Haldar, Director, CRND.

2.10 - 3.10 pm. Panel I. Public Policies of, by and for Rare Disease Communities.

Chair & Moderator. Adviti Bali ND 23. President Club RareND 

Panelists.  Megan Crowley ND ’19; Frances Fitzgerald ND’18, Gabe Donavan; Annie Hamilton ND ’26

3.10 - 3.30 pm. Panel II. Megan K. Crowley Award for Patient Advocacy.

John M. and Mary Jo Boler Rare Disease Research Award.                                                 

Award Presenter; Megan Crowley ND ’19.     

Awardees; Adviti Bali ND ’23; Camey Calzolano ND ’22; Bailey Perczak ND ’22.

Break 3.30 -3.45 pm.

3.50 -4.50 pm. Panel III. Know the Glow. Preventing Childhood Blindness.  

Chair & Moderator Megan Webber ND’90 Know the Glow.           

Panelists. Megan Webber ND’90; Adviti Bali ND ’23; Camey Calzolano ND ’22; Bailey Perczak ND ’22.