Weekly Webinar Series. Mondays April 4th, April 11th, April 25th and Tuesday, April 26thth 2022.
Click here to register
April 4th. 2.00-5.00 pm: Living with Rare
Panel I. Public Policies of, by and for Rare Disease Communities.
Panel II. Student Awards:
Megan K. Crowley Award for Patient Advocacy and John M. and Mary Jo Boler Rare Disease Research Awards.
Panel III. Know the Glow. Preventing Childhood Blindness.
April 11th. 2.00-5.00 pm: Neurometabolic Non Ketotic Hyperglycinemia
Panels. Patient Families, Research and Translation.
April 18th. Easter Break
April 25th . 2.00-5.00 pm: Intellectual Disability
Panels. Patient Families, Research and Translation.
April 26th. Rare Tumors
Panels. Students, Patient families, Research and Translation.