Rare and Neglected Diseases Symposium 2022

- (part of a series)

Weekly Webinar SeriesMondays April 4th, April 11th, April 25th and Tuesday, April 26thth 2022. 

Click here to register


April 4th. 2.00-5.00 pm: Living with Rare

Panel I. Public Policies of, by and for Rare Disease Communities.

Panel II. Student Awards:

Megan K. Crowley Award for Patient Advocacy and John M. and Mary Jo Boler Rare Disease Research Awards.

Panel III.  Know the Glow. Preventing Childhood Blindness.


April 11th.  2.00-5.00 pm: Neurometabolic Non Ketotic Hyperglycinemia 

Panels.  Patient Families, Research and Translation.


April 18th.  Easter Break 


April 25th .  2.00-5.00 pm: Intellectual Disability

Panels.  Patient Families, Research and Translation.


April 26th. Rare Tumors

Panels.  Students, Patient families, Research and Translation.