A Bi-Annual Newsletter for the Non-Ketotic Hyperglycinemia Rare Disease Community & Beyond

Author: Fighting for Fiona & Friends

Dear NKH Supporters,

We’re excited to share a new family initiative taken on by the Fitzpatrick, Nohelty, and Sarb families - a bi-annual newsletter for the NKH community.

The goal of the newsletter is three-fold, to: 1) to share information, 2) increase awareness and 3) together, accelerate progress in the fight against NKH.

Future editions will continue to focus on the personal stories, the latest research and news, and content that increases awareness and progresses the fight against NKH.

Read and Share! 

Click on the picture below to read the NKH Newsletter...